Self-Advocacy in Sexual Health Appointments

Pelvic exams and sexual health appointments can feel like a lot to handle. A pelvic exam is when a doctor looks at the vulva and vagina. You can calm your nerves by preparing ahead of time. Setting boundaries beforehand also helps. Speaking up for yourself will make you feel safe, heard, and at ease during your visit.

First, what to expect at a sexual health appointment:

  • Routine checkup
  • Discomfort, pain or mild pressure
  • Talking about birth control
  • Pelvic exam
  • Pap smear
  • Reproductive health concerns
    • Infertility
    • Sexual transmitted infections
    • Pregnancy complications

Before your appointment:

  1. Decide if you want emotional support.
    • A close friend, guardian, or family member offers comfort and support.
  2. Bring comfort items.
    • If waiting rooms make you anxious, bring a fidget toy or a stress ball. A small comfort item can help too. These items can help pass time.
  3. Planning Communication
    • Think about how you want to talk to your provider. You can do this by speaking, writing, or using a patient portal. Let your healthcare professional know your preference.
  4. Adjust the environment.
    • Share your lighting preferences. Should it be bright or dim? This will help you feel at ease.
    • If the noise or lights bother you, you can wait in the car until the professionals are ready for you.

During Appointment:

  1. Write down questions.
    • It’s easy to forget questions you had before the professional sees you. Writing or typing them first helps you cover everything you want.
  2. Visuals
    • A body map is a visual tool, a drawing of a persons body. You can show areas of interest on your body by simply pointing. It helps you show where something can hurt or feel different. It also indicates where something needs to be checked by the doctor.
    • If you’re visiting a doctor focused on private parts or sexual health, you can use the body map. For example, it helps show specific areas of concern. Without needing to use a lot of words.
    • Point to or circle areas you want to discuss
    • Use colors or symbols to show pain (ex: red for pain)
    • Write how it feels (sharp, dull, tingly)
    • Check out this Body map template.
  3. Use resources

To prepare for your sexual health appointment, follow these simple steps. It also ensures that all your concerns are covered and helps you feel at ease. Your comfort and well-being are always a number one priority.

Infographic on self-advocacy in sexual health appointments, featuring a doctor, a patient, and medical staff, with sections detailing what to expect during appointments and tips for preparation.

How to Handle Rejection: Tips, Resources, and Lesson Plans

Listed below are a slideshow, worksheet, and plain-language guide designed to help people understand and cope with rejection. These resources explain what rejection can look like and explore how people react when they feel rejected. You’ll also find ways to cope and work through those feelings in healthy ways.

Resources:

Part 1: Slideshow Rejection 101

Part 2: Rejection worksheet

Part 3: Plain Text Rejection Guide (No formatting)

Supporting Resource: 10 tips for dealing with romantic rejection

Rejection is a normal part of life, and it’s something everyone goes through. You don’t have to run away from it, you can face it and grow stronger from it.

ASL Sex Education Resources from Planned Parenthood

Last year, Planned Parenthood released a series of 4 videos that cover 4 different topics: consent, body image, identity, and birth control/sexually transmitted infections. These videos are linked below, and are available for free on Youtube. The group of friends in each video communicate in American Sign Language, and closed captioning is available in Spanish and English.

This first video is about consent. Ciara and Dev are getting into a relationship, and Ciara discusses with her friends how to set boundaries without feeling “mean”, by being honest, clear, and kind.

This second video is about birth control and sexually transmitted infections. One of the friends, Ciara, tells Ava that she is ready to have sex with Dev, and Ava and Ciara discuss the steps to follow before having sex. First, they discuss STI testing before having intercourse, and then acquiring birth control. Dev, Em, and Bo also talk about condom use, and Em explains that when at the doctor, they are legally required to provide an interpreter for those that are Deaf or hard of hearing.

This third video discusses identity; sexual orientation, gender identity, and Deaf identity. There is a conversation about pronouns as well as owning a Deaf identity between a group of high-school-aged friends.

This final video discusses body image. Two of the high-school-aged friends in the group struggle with their body image, one of which is also struggling with what to wear to a pool party as a transgender person.

Advocates for Youth – Sex Education Lesson Plans

Advocates for Youth is an organization that is dedicated to improving sexual and reproductive health among adolescents and securing the rights of young people.

Advocates for Youth recognizes that sex education should equip people with tools to make informed decisions about sex and relationships, instead of withholding information and telling young people not to have sex.

The organization works with AMAZE to publish animated videos that provide children and adolescents with accessible and age-appropriate sexual information. More information about AMAZE can be found here.

Advocates for Youth offers a K-12 sex education curriculum specifically for students with intellectual disabilities that includes all of the topics the Centers for Disease Control and Prevention has labeled as essential. The curriculum emphasizes the importance of rights, respect, and responsibility, and covers topics such as gender identity, race, and healthy relationships. This curriculum can be found on the Advocates for Youth website, linked here.

In addition to making efforts to improve sexual education in the classroom, Advocates for Youth hosts virtual and in-person events for people interested in learning more! Some of their previous events involved discussions about STIs, abortion, and consent.

Sex Ed for Self-Advocates

The Organization for Autism Research (OAR) was founded by parents and grandparents. OAR strives to use science to address social, educational, and treatment concerns in the Autism community. Their mission is to fund research, provide useful information and resources to the community, as well as hold programs to improve quality of life for individuals with Autism.

The OAR has put together an online guide for sexuality and sex ed. This guide is self-paced and intended for people on the Autism Spectrum aged 15 and older. This guide consists of nine modules: Public vs Private, Puberty, Healthy Relationships, Consent, Dating 101, Sexual Orientation/Gender Identity, Am I Ready?, Sexual Activity, Online Relationships and Safety. Each module consists of a video overview and 10-15 smaller sections.

This guide is completely free and can be accessed at the link below:

Mad Hatter Wellness

Mad Hatter Wellness is a company that creates comprehensive sexual health programs that teach and empower people with intellectual disabilities. Their curriculum Sexuality for All Abilities, contains activities and lessons that cover many different topics regarding sexuality and relationships. This is a holistic program that combines mindfulness techniques to address sexuality topics and provides a safe environment that ensures growth and learning. They offer a student and an adult option of the curriculum and can be purchased for $375 at the link below.

On top of this, Mad Hatter Wellness also sells other tools to help teach and practice topics that are covered in the curriculum. Their Boundaries Flip Book that form sentences regarding boundaries. It created discussion for healthy boundaries, as well as highlights what is okay and what isn’t, and when these behaviors are appropriate. On top of this, they also have a Family Discussion Guide, which offers activities, information, and discussion questions that will help families discuss healthy relationships and boundaries. In addition to these, they offer self-paced online courses, and more physical resources that can be used to implement the curriculum.

Oak Hill Positive Choices

Oak Hill Center for Relationship and Sexuality Education (CRSE) looks to educate and increase access to important sexual health information through various preventative programs. They also aim to decrease the vulnerability to sexual abuse that the intellectual/developmental disability community endures. They offer different curriculums, workbooks, parent/caregiver workshops, professional development workshops and therapeutic education.

Their most recent curriculum, Positive Choices, is designed for secondary students and aims to improve critical judgement about sexual health and relationship safety. On top of this, students will learn life skills, safe boundaries, women’s and men’s health, healthy relationships, and sexuality. This curriculum can be purchased on the Oak Hills website and costs $430. The teacher’s manual can be purchased for $180, and the student workbook is $25. Information is linked below: http://relationshipandsexuality.oakhillct.org/positive-choices/

Open Future Learning

Open Future Learning is a company that offers a wide variety of online training for staff, or anyone else working with individuals with disabilities. They offer modules in abuse prevention, communication, advocacy, and many more topics. They have staff training modules, 30 minute programs, and an audio learning module. Membership can range from $112-$2263 per month, depending on the amount of active users. Linked below is Open Future’s Homepage.

https://www.openfuturelearning.org/index.cfm?fuseaction=login.home

Teen Talk Adapted for All Abilities

Health Connection is a company that designs sex education curriculum for teachers. Teen Talk: Adapted for All Abilities is an adaptation of their Teen Talk curriculum, and is designed to cater to 7th to 12th grade students with disabilities. This is an adaptation of This curriculum focuses on tolerance, respect, and personal values articulation. It addresses topics like sexuality, gender roles, and reproductive healthcare. This curriculum also uses gender inclusive language. The Adapted for All Abilities can be purchased for $345 (plus tax). You can find more information at the link below:

https://www.health-connected.org/teen-talk-aaa

Elevatus Training: Online and In-Person Training to be a Sexuality Educator

Elevatus offers a variety trainings staff, direct support professionals, educators, self-advocates and parents to teach sexuality education to children and adults with developmental disabilities. In addition to their trainings, Elevatus has a sex education curriculum that can be purchased.

Here are examples of some of their trainings and the costs:

  • For Staff and Professionals – Developmental Disabilities and Sexuality 101 ($397)
  • For Parents/Guardians – Talking With Your Kids: Developmental Disability and Sexuality ($47)
  • In-service/live workshops and a 3-Day Certificate Training ($725) for anyone who wants to lead sexuality education classes with people with developmental disabilities.

To get more information about Elevatus Training:-https://www.elevatustraining.com/

Friendship & Dating Program: Helping Children and Adults to Acquire Relationship Skills

The Friendships & Dating Program (FDP) offers inclusive teaching plans for individuals with intellectual and developmental disabilities. A unique aspect of this program is its emphasis on preventing interpersonal violence. There is a version of this program for youth with serious emotional disturbance. The FDP focuses on skill development through experimental learning and group activities with an interactive 10-week curricular plan. Interested groups can purchase the curriculum on its own ($600) or purchase the curriculum in combination with a train the trainer support provided live online ($1,800). You can find more information about the FDP from the below link. Some module illustrations are available on the website.

https://www.fdprogram.org/

More Info. Less Weird. AMAZE Takes the Awkward Out of Sex Ed

These days, it is hard to find an age appropriate content about sex, dating and abuse. Children have questions about their bodies, gender and reproduction. Teenagers worry if their bodies are developing normally or not while older adolescents struggle with peer pressure, changing relationships and emerging sexual feelings. AMAZE is an amazing website for parents and educators which helps them to expose their child to age appropriate content about sex through short videos. The website provides an insight to young people to successfully understand puberty, healthy body image, distinguish between healthy and unhealthy relationships, concepts of consent and mutual respect. Video topics are designed to meet the learning objectives outlined in the National Sexuality Education Standards.

Parents are the primary sexual educators of their children. By answering children’s questions, a parent let them know that you are “askable” and establishes an open line of communication that will serve you and your children well as they mature into sexually healthy young adults.

AMAZE also has resources for younger children like the parents’ playlist from amaze jr. It is designed to help parents become comfortable and confident talking to their children openly and honestly at any age.

https://amaze.org/

There are some videos for parents reference.

This video will help parents to know when to talk about sexuality with their kids.

Do you think so playing “doctor – doctor” is safe or not? Check this video out which helps you to communicate your thinking and others about this game.

This video will model to the adolescents with disabilities to learn about manage their relationships with person they like or have attractions. This video guide them to deal with peer pressure and make healthy relationship.

This video helps your child to understand their body parts, difference between a male and female, and similarities between boy and girl.

https://youtu.be/wW627gpkWbw

Healthy Realationships and Autism

healthy relationships and autismA new curriculum called “Healthy Relationships and Autism” is now available from Wesley Spectrum (a behavioral health organization with several locations in the Pittsburgh, PA area). It was designed to teach skills to adolescents and young adults with Autism Spectrum Disorder or cognitive challenges in the areas of self care, sexuality, and relationship development.  Their website has an example lesson to help you determine if it would be right for your students.  They do not publish their pricing information (you have to email them for more information but they will send you a sample packet).

I have not used this curriculum but there is some evidence of it’s effectiveness.  A study published in School and Educational Psychology evaluated this program with six students.  These students showed increases in sexual knowledge which they retained one month after completing the class.

PEERS Program

The Program for the Education and Enrichment of Relational Skills (PEERS) was originally developed at UCLA by Dr. Elizabeth Laugeson, Founder and Director of the UCLA PEERS Clinic, and Dr. Fred Frankel in 2005 and has expanded to locations across the United States and the world. PEERS is a manualized, social skills training intervention for youth with social challenges.

There are four options for getting training in PEERS. (1) The PEERS Certified Training Seminar last two days and is hosted at UCLA.  It is designed specifically for mental health professionals and educators interested in learning and/or implementing the PEERS intervention into their clinical practice. (2) PEERS provides off-site training seminars, presentations or talks for a variety of agencies based on their specific needs.  These may range from 1-4 days, with varying costs. (3) The PEERS Certified School-based Training for Educators is designed exclusively for teachers, school psychologists, counselors, speech and language pathologists, administrators, and school-based professionals who are interested in learning to implement The PEERS Curriculum for School-based Professionals. Attendees will obtain 24 hours of training over 3 days and this training also takes place at UCLA. And (4) PEERS provides off-site School-based training seminars, presentations or talks for a variety of agencies based on their specific needs.  These may range from 1-4 days, with varying costs.

The PEERS program naturally lends itself to sex ed instruction.  For example, the adolescent program focuses on

  • How to use appropriate conversational skills
  • How to find common interests by trading information
  • How to appropriately use humor
  • How to enter and exit conversations between peers
  • How to be a good host during get-togethers
  • How to make phone calls to friends
  • How to choose appropriate friends
  • How to be a good sport
  • How to handle arguments and disagreements
  • How to change a bad reputation
  • How to handle rejection, teasing, and bullying
  • How to handle rumors and gossip

This video features a program that uses PEERS for sex ed

The Healthy Bodies Toolkit

Healthy bodiesThis publication was developed and written by Vanderbilt Leadership Education in Neurodevelopmental Disabilities (LEND).  There is a boy version and girl version.  Each version has a booklet for parents or teachers and supplemental materials which include storyboards and visuals that you can use in implementing the methods outlined in the toolkit.  It is free and there is a Spanish version!

Here is the website: https://vkc.vumc.org/healthybodies/