Choosing the Right Birth Control

There are many different methods to choose from when it come to birth control. If you are interested in starting birth control, make sure you do some research to find which one works for you!

Baylor College of Medicine* shares a list of contraceptive methods and includes resources for learning more about how they work.

Bedsider posted an article titled “What You Should Know About Birth Control When You Have a Disability.” The article discusses how to talk with your healthcare provider and find the right birth control for yourself.

The Cerebral Palsy Foundation* has a list of things you should consider before going on birth control. This source is specifically for people with Cerebral Palsy.

TASCC (Talking About Sexuality in Canadian Communities) is a resource for people with disabilities in Canada, but the information is also applicable to people in other countries. The source shares different methods of preventing pregnancy and how birth control can prevent STIs.

Planned Parenthood shares 18 methods of birth control and provides information on how they work. You can search for contraception based on how well they prevent pregnancy, help with periods, prevent STDs, whether or not they use hormones, and how easy they are to use. Planned Parenthood also includes a range of prices for each birth control method.

*this resource uses the term “woman”

Sexual Health Representatives by State

A C D F G H I K L M N O P S T U V W

Alabama: The University of Alabama at Birmingham offers resources on sexuality and relationships, sexual abuse, and tips for parents when discussing sexuality with their children.

Alaska: Olmstead Rights shares a list of resources and advocacy organizations in Alaska. The resources are directed towards individuals with physical, intellectual and developmental disabilities, and mental illness.

Arizona: Special Olympics Arizona offers a list of resources for individuals with disabilities who want to learn more about health and wellness.

Arkansas: The Arkansas Disability Coalition is an organization that helps families and individuals with disabilities by providing health-related support, information, and resources.

California: Disability Without Abuse Project is dedicated to spreading awareness about abuse faced by individuals with intellectual or developmental disabilities. They offer resources, a newsfeed, and a blog for people who are interested in learning more.

Colorado: The Initiative Colorado works to raise awareness and break down barriers to accessing health services.

Connecticut: The Center for Relationship and Sexuality Education strives to make sexual health information more accessible for members of the intellectual and developmental disability community. They provide learning materials and professional development programs.

Delaware: Planned Parenthood of Delaware provides education and training services for people with intellectual and developmental disabilities.

Florida: The Disability and Health Program aims to increase the accessibility and availability of health resources for people in the disability community.

Georgia: The Georgia Council on Developmental Disabilities emphasizes the right for all humans to have equal access to proper sexual education.

Hawaii: Hawaii Pacific Health is a resource for people who would like to learn more about sexual abuse, and for those who have already experienced sexual abuse.

Idaho: DisAbility Rights Idaho provides protection and advocacy for people with disabilities.

Illinois: Community Choices supports individuals with disabilities in the process of filling medications, scheduling and going to appointments, and connecting with health representatives.

Indiana: Indiana Institute on Disability and Community has a feature on their website where you can input information to find resources specific to your situation. They also offer training and workshops and other opportunities to become involved in the community.

Iowa: The Iowa Department of Public Health provides a list of resources for people with disabilities who would like to learn more about sexual health.

Kansas: The Institute for Health and Disability Policy Studies provides Kansans with programs and services that promote healthy living.

Kentucky: The Kentucky Inclusive Health Collaborative provides inclusive services for individuals with disabilities and their families.

Louisiana: Green Clinic offers resources for dating violence and sexual assault, and sexual health. They also share resources for STI testing.

Maine: Momentum RELATE offers education, dialogue, advocacy, and training for people with disabilities. They are committed to helping people develop a healthy and positive understanding of sexuality and relationships.

Maryland: Respectability offers general sexuality resources for members of the disability community. Some of the topics they includes resources for are masturbation, hygiene and self care, puberty, and relationships.

Massachusetts: The Massachusetts Department of Public Health and the Massachusetts Department of Developmental Services collaborated to create a guide on healthy relationships and sexuality.

Michigan: Michigan Medicine Center for Disability Health and Wellness offers innovative clinical care for individuals with disabilities.

Minnesota: Family Tree Clinic offers a wide range of services including birth control, annual exams, trans hormone care, STI testing and treatment, and Rapid HIV testing. They also offer a health education program for members of the community who are deaf, deafblind, and hard of hearing.

Mississippi: The Arc focuses on respect, abilities, freedom of choice, and inclusion. They provide resources for people with disabilities regarding self-advocacy.

Missouri: SHADE (Sexual Health and Disability Education) teaches sexual education to people with disabilities. They have a newsletter, resources, and guides for supplemental information.

Montana: Montana Disability and Health Program offers hundreds of health resources for people with specific disabilities and chronic conditions.

Nebraska: Munroe-Meyer Institute has a team of occupational therapists, physical therapists, psychologists, and recreational therapists who offer sexual health services to individuals with intellectual and developmental disabilities.

Nevada: Planned Parenthood offers comprehensive sex education and services for individuals with disabilities.

New Hampshire: Disability Rights Center – NH offers information and assistance regarding Medicaid and healthcare, access and accommodations, and general health.

New Hampshire: Elevatus Training is an organization that offers extensive information about navigating sexuality as a person with a disability.

New Jersey: The Division of Disability Services in the Department of Human Services collaborates with health educators, policy makers, and experts in the field of health to create an inclusive setting for people with disabilities to learn about sexual health.

New Jersey: A.S.C.O.T. Counseling offers presentations and counseling on subjects like autism and sexuality, and the experiences women on the spectrum have.

New Jersey: Center for Parent Information and Resources shares resources and information regarding sexual education for members of the disability community.

New Mexico: Planned Parenthood of the Rocky Mountains provides sexual health services and resources for people with disabilities.

New York: Project SHINE works to create innovative and accessible sexual health tools for members of the disability community.

North Carolina: Autism Society of North Carolina offers an extensive list of resources about sexual health for youth and adults with disabilities.

North Dakota: My Ally Health is a reproductive health clinic. They assure that their services are available to anyone regardless of disability status, race, sex, religion, or economic status.

Ohio: The Ohio Developmental Disabilities Council has meetings, sends newsletters, holds events, and offers resources about health for people with disabilities. One of their previous events involved a discussion about healthy romantic relationships and sexuality in the I/DD community!

Ohio: The University Center for Excellence in Developmental Disabilities provides members of the community with sexual health resources such as guides, teaching tools, videos, and training.

Oklahoma: Planned Parenthood offers sex education for people with developmental disabilities, along with other sexual health resources and services.

Oregon: The Sexual Health Equity for Individuals with Intellectual/Developmental Disabilities (SHEIDD) provides sexual health education to young people with intellectual or developmental disabilities. The website has a list of resources and guidelines for people who are interested.

Pennsylvania: Positive Approaches Journal was published by the Pennsylvania Department of Human Services. The journal features research and information on sexuality, LGBTQIA+ inclusion, and relationships.

Rhode Island: Zencare is a resource that connects people with disabilities with sex therapists in the area.

South Carolina: United Spinal Association is a source for people with spinal cord injuries or disorders. They provide tips for patients and discuss how to plan for a doctor visit.

South Carolina: Able South Carolina is a community-based nonprofit that offers a variety of services for individuals with disabilities.

South Dakota: Bridging South Dakota is a program that offers support for people with disabilities who are survivors of sexual assault.

South Dakota: Planned Parenthood provides a variety of services, such as abortion, birth control, pregnancy testing and services, and STD testing and treatment.

Tennessee: Tennessee Disability Services offers a list of resources on dating and romantic relationships, targeted towards individuals with intellectual disabilities.

Tennessee: Autism Tennessee offers occasional events that involve discussions about relationships and sex. Their Sexual Identity & Inclusion Alliance facilitator is very passionate about creating equal access to information for everyone.

Texas: Planned Parenthood provides a variety of services, such as abortion, birth control, pregnancy testing and services, and STD testing and treatment.

Texas: Navigate Life Texas is a resource for parents of children with disabilities. They offer tips on discussing puberty and sexuality, how to talk to the doctor, and more.

Utah: Planned Parenthood Association of Utah provides a variety of services, such as abortion, birth control, pregnancy testing and services, and STD testing and treatment.

Vermont: Planned Parenthood of Northern New England offers sexuality education for people with developmental disabilities, along with other sexual health resources and services.

Virginia: Disability-inclusive Sexual Health Network (DSHN) connects and supports youths with disabilities in Virginia through sexual education. They have a youth advisory board, resources, and plenty of ways to get involved on their website.

Washington: The Arc of King County shares resources on relationships, sexuality, and gender. Their goal is to ensure that everyone gets equal access to sexual health information.

Washington: The University of Washington has compiled a list of resources on sexuality and relationships for individuals with intellectual disabilities and autism.

West Virginia: West Virginia Developmental Disabilities Council shares resources about body safety and sexual assault prevention.

Wisconsin: Wisconsin Behavioral Health Clinic emphasizes the importance of making sexual health information more accessible, and offers a variety of resources and services for people with disabilities.

Wyoming: The University of Wyoming shares resources on sexual and reproductive health, healthy relationships, and sexual orientation.

If you have a relevant organization that you would like added to this list, please contact us.

Pregnancy and Disability Resources

While pregnancy is usually an exciting time, it can also be intimidating. There is a lot to know about being pregnant and having a child as a person with a disability, and luckily there are resources available to help!

The National Research Center for Parents with Disabilities is a collaborative research and advocacy project that aims to help parents with disabilities. The website includes a “data hub” with tips and information for people who are considering having a child, people who are pregnant, and people who already are already parents.

Disabled Parenting Project is a branch of the National Research Center for Parents with Disabilities. The project is dedicated to allowing people with disabilities to share their experiences and receive advice.

The University of Cincinnati Center for Excellence in Developmental Disabilities created a guide* for people who identify as a pregnant woman with a developmental disability. It includes information on finding accessible healthcare providers, building a support network, and self-advocating during medical visits.

Baylor College of Medicine* offers information about prenatal care, labor and delivery, and postpartum care. They have subpages for LGBTQ+ pregnancy and assisted reproduction.

*this resource uses the term “woman”

The Bump’n Joystick: An Accessible and Gender Fluid Sex Toy

Bump’n is a brand that was created to make sexual pleasure more accessible. All of their content and products are co-created by a team who aims to inspire people to talk more openly about sexuality and disability.

The Bump’n Joystick is a sex toy that does not require you to use your hands! The Joystick has different sized holes in its base for you to insert your favorite toys. You simply hug the top of the toy or lay on it, and it does the work for you!

This toy is currently available for preorder for $249 on the Bump’n website!

Advocates for Youth – Sex Education Lesson Plans

Advocates for Youth is an organization that is dedicated to improving sexual and reproductive health among adolescents and securing the rights of young people.

Advocates for Youth recognizes that sex education should equip people with tools to make informed decisions about sex and relationships, instead of withholding information and telling young people not to have sex.

The organization works with AMAZE to publish animated videos that provide children and adolescents with accessible and age-appropriate sexual information. More information about AMAZE can be found here.

Advocates for Youth offers a K-12 sex education curriculum specifically for students with intellectual disabilities that includes all of the topics the Centers for Disease Control and Prevention has labeled as essential. The curriculum emphasizes the importance of rights, respect, and responsibility, and covers topics such as gender identity, race, and healthy relationships. This curriculum can be found on the Advocates for Youth website, linked here.

In addition to making efforts to improve sexual education in the classroom, Advocates for Youth hosts virtual and in-person events for people interested in learning more! Some of their previous events involved discussions about STIs, abortion, and consent.

Mad Hatter Wellness

Mad Hatter Wellness is a company that creates comprehensive sexual health programs that teach and empower people with intellectual disabilities. Their curriculum Sexuality for All Abilities, contains activities and lessons that cover many different topics regarding sexuality and relationships. This is a holistic program that combines mindfulness techniques to address sexuality topics and provides a safe environment that ensures growth and learning. They offer a student and an adult option of the curriculum and can be purchased for $375 at the link below.

On top of this, Mad Hatter Wellness also sells other tools to help teach and practice topics that are covered in the curriculum. Their Boundaries Flip Book that form sentences regarding boundaries. It created discussion for healthy boundaries, as well as highlights what is okay and what isn’t, and when these behaviors are appropriate. On top of this, they also have a Family Discussion Guide, which offers activities, information, and discussion questions that will help families discuss healthy relationships and boundaries. In addition to these, they offer self-paced online courses, and more physical resources that can be used to implement the curriculum.

Oak Hill Positive Choices

Oak Hill Center for Relationship and Sexuality Education (CRSE) looks to educate and increase access to important sexual health information through various preventative programs. They also aim to decrease the vulnerability to sexual abuse that the intellectual/developmental disability community endures. They offer different curriculums, workbooks, parent/caregiver workshops, professional development workshops and therapeutic education.

Their most recent curriculum, Positive Choices, is designed for secondary students and aims to improve critical judgement about sexual health and relationship safety. On top of this, students will learn life skills, safe boundaries, women’s and men’s health, healthy relationships, and sexuality. This curriculum can be purchased on the Oak Hills website and costs $430. The teacher’s manual can be purchased for $180, and the student workbook is $25. Information is linked below: http://relationshipandsexuality.oakhillct.org/positive-choices/

Open Future Learning

Open Future Learning is a company that offers a wide variety of online training for staff, or anyone else working with individuals with disabilities. They offer modules in abuse prevention, communication, advocacy, and many more topics. They have staff training modules, 30 minute programs, and an audio learning module. Membership can range from $112-$2263 per month, depending on the amount of active users. Linked below is Open Future’s Homepage.

https://www.openfuturelearning.org/index.cfm?fuseaction=login.home

Elevatus Training: Online and In-Person Training to be a Sexuality Educator

Elevatus offers a variety trainings staff, direct support professionals, educators, self-advocates and parents to teach sexuality education to children and adults with developmental disabilities. In addition to their trainings, Elevatus has a sex education curriculum that can be purchased.

Here are examples of some of their trainings and the costs:

  • For Staff and Professionals – Developmental Disabilities and Sexuality 101 ($397)
  • For Parents/Guardians – Talking With Your Kids: Developmental Disability and Sexuality ($47)
  • In-service/live workshops and a 3-Day Certificate Training ($725) for anyone who wants to lead sexuality education classes with people with developmental disabilities.

To get more information about Elevatus Training:-https://www.elevatustraining.com/

Friendship & Dating Program: Helping Children and Adults to Acquire Relationship Skills

The Friendships & Dating Program (FDP) offers inclusive teaching plans for individuals with intellectual and developmental disabilities. A unique aspect of this program is its emphasis on preventing interpersonal violence. There is a version of this program for youth with serious emotional disturbance. The FDP focuses on skill development through experimental learning and group activities with an interactive 10-week curricular plan. Interested groups can purchase the curriculum on its own ($600) or purchase the curriculum in combination with a train the trainer support provided live online ($1,800). You can find more information about the FDP from the below link. Some module illustrations are available on the website.

https://www.fdprogram.org/

More Info. Less Weird. AMAZE Takes the Awkward Out of Sex Ed

These days, it is hard to find an age appropriate content about sex, dating and abuse. Children have questions about their bodies, gender and reproduction. Teenagers worry if their bodies are developing normally or not while older adolescents struggle with peer pressure, changing relationships and emerging sexual feelings. AMAZE is an amazing website for parents and educators which helps them to expose their child to age appropriate content about sex through short videos. The website provides an insight to young people to successfully understand puberty, healthy body image, distinguish between healthy and unhealthy relationships, concepts of consent and mutual respect. Video topics are designed to meet the learning objectives outlined in the National Sexuality Education Standards.

Parents are the primary sexual educators of their children. By answering children’s questions, a parent let them know that you are “askable” and establishes an open line of communication that will serve you and your children well as they mature into sexually healthy young adults.

AMAZE also has resources for younger children like the parents’ playlist from amaze jr. It is designed to help parents become comfortable and confident talking to their children openly and honestly at any age.

https://amaze.org/

There are some videos for parents reference.

This video will help parents to know when to talk about sexuality with their kids.

Do you think so playing “doctor – doctor” is safe or not? Check this video out which helps you to communicate your thinking and others about this game.

This video will model to the adolescents with disabilities to learn about manage their relationships with person they like or have attractions. This video guide them to deal with peer pressure and make healthy relationship.

This video helps your child to understand their body parts, difference between a male and female, and similarities between boy and girl.

https://youtu.be/wW627gpkWbw

Sexuality Resources for Parents

Raising an individual with a disability presents a different set of obstacles then an abled individual may, but one topic that all parents must address is sexuality. Individuals with disabilities are sexual beings and therefore deserve an education on sexuality. While parents may acknowledge this need, finding resources and strategies to present the information may be more difficult if you are raising an individual who requires a different method of learning.

The Sexuality Resource Center for Parents provides a well rounded variety of information pertaining to sexuality. The website includes a section of information labeled “for all parents” that contains subjects they believe are useful for all children. In addition, they provide sections titles “For parents of children of typical development”, “For parents of children with developmental disabilities”, and “For parents of children with physical disabilities”. In each section, you can find a variety of information such as basics, specifics, activities, and additional resources. They also include tip guides!

The Sexuality Resource Center for Parents works to provide a better, comprehensive information base for parents to use when addressing sexuality to their child. The variety of knowledge is extremely useful when trying to find information to meet your child’s specific needs. In their own words, their mission statement claims “It’s time to acknowledge that children with developmental disabilities will become adults with sexual feelings, and as such, we must provide them with the information and skills they’ll need to become sexually healthy adults.

http://www.srcp.org/index.html

Sex Education for Individuals with I/DD

Sexual Education is known to be a vital part of education that many people with disabilities do not receive. The National Council on Independent Living (NCIL) developed an excellent series of youtube videos aimed to help close this gap. The sex ed for individuals with I/DD project is a 10 part video series that can be seen on youtube. The project contains videos that discuss a range of important sexual information from healthy relationships and consent to how to use a condom. The videos also contain self advocates. Understanding that individuals with disabilities are sexual beings and informing such individuals on all sexual topics is extremely important. The NCIL’s video series is an amazing resource. Linked below is the introduction video to the series. The videos can also be accessed though the Nation Council on Independent Living youtube channel.

NCIL Sex Education for Individuals with I/DD Project video one

Talking About Sex: Sexuality Education for Learners with Disabilities

From the Publishers:

Key social and emotional milestones during adolescence are often directly related to the abilities to initiate and maintain intimate relationships, maintain physically maturing bodies, and manage personal sexuality. Most adolescents with developmental disabilities have particular difficulty expressing sexuality in satisfying ways, consequently facing issues such as limited intimate relationships, low self-esteem, increased social isolation, deregulated emotional maintenance, reduced sexual functioning, and limited sexual health.
Appropriate sexual knowledge assists not only in achieving personal fulfillment, but protection from mistreatment, abuse, unplanned pregnancies, or sexually transmitted diseases (STDs). It also works to help solve problems of loneliness and problems with self-esteem.
This book will address this but also much more. Issues of physical and cognitive development will be discussed, including appropriate sexual development/urges and brain development, and innate similarities and differences of sexuality that could occur between people with autism spectrum disorders and intellectual or developmental disabilities, including the complexities of physical disabilities. The authors will also consider special considerations for group homes and recreational facilities, and specifically focus on concepts of ethics and models of consent (medical, legal, social, and educational), as well as how to deal with uncertainty.

Guardianship and Sexuality

This is one of the most common questions  regarding sexuality and disability…

If you are a guardian of an individual with a developmental disability what is your role and legal authority regarding decisions on sexual activity?

According to the National Guardianship Association:

Guardians should apply the professional judgment of qualified clinicians in developing individualized plans. These plans for services and supports should address competencies which the ward possesses, areas where education and
training are required, and current incompetencies which may implicate a duty to protect the individual. What this means in practical terms for professional guardians can be stated in four simple principles:

  1. Know the law and regulations in the jurisdictions of your practice.

  2. Know the bounds of your decision-making authority within your professional standards and ethics.

  3. Know the extent and/or limitations of your decision-making authority imposed by the court.

  4. Utilize treatment teams and ethics committees whenever possible.

One of the important pieces of these guidelines is understanding the law and regulations in your individual state.  Sterilization and abortion are two major sexuality related decisions that often have specific laws and regulations regarding their practice.  These have evolved from a long history of forced sterilization of individuals with disabilities and there continues to be controversy today (for example this recent case).  Other decisions such as access to sexuality education, use of contraceptives, marriage,  procreation, and access to sexual activity are often outside of the purview of the courts.  In these cases  guardians are instructed to use their own judgement based on:

  1.  The decision as the ward would when the ward’s wishes are known or can be established by interviewing the ward, their friends and family, or through a preference stating document such as a living will. Or…

  2. The representatives values and beliefs in order to make the decision they feel would best serve the ward.

And must follow this stipulation:

The surrogate decision maker cannot give consent for sexual activities, but
must protect the rights to privacy for their wards when dealing with issues such as contraception or marriage, if the situation is appropriate.