The Autism-Friendly Guide to Periods is a comprehensive guide for people ages 9-16. This book covers the basics of menstruation and offers direct advice on what exactly to expect when you start your period. On top of this, it provides advice for everyone, not just the person menstruating. This book offers advice to the parents or caregivers, and alleviates some anxiety that people face when asking for help. This book was created in consultation with young people and doctors, so it’s a great resource.
The author of The Autism-Friendly Guide to Periods, Robyn Steward, is Autistic herself, and made this book accessible and as inclusive as possible. This book is written in plain language, is straightforward, and suits the needs of Autistic individuals. The book offers step-by-step photos and instructions on how to change pads/tampons, and discusses alternatives to those. She also highlights what may be sensory issues for autistic people.
The Autism-Friendly Guide to Periods can be purchased here: https://www.amazon.com/Autism-Friendly-Guide-Periods-Robyn-Steward/dp/1785923242
It’s extremely important for Autistic individuals (and those around them) to have a plan for handling menstruation. Someone’s first period can be a stressful, painful, and anxiety-inducing experience. Stress can be planned for an alleviated with careful education and preparation. This book is a fantastic resource and a great way to open up conversation about periods. For more information on planning for menstruation, check here: https://asdsexed.org/2012/06/08/menstruation-plan-26/
I have to say, the puberty session went great! It was just at the right level. Here are the activities we did…
Defining Puberty: This was the language we used to define puberty: puberty is your body changing from a child’s body to an adult’s body. It causes changes to your body inside and outside. Everyone goes through puberty but it might happen at different times and people’s bodies change to look different. Puberty is a time when you start to get sexual feelings. You don’t have control over going through puberty, but you do have control over how you react to it. It’s normal to have mixed feelings, some good feelings and some negative feelings. This definition highlights several key features of puberty (it’s in some ways different and some ways the same for everyone, it’s a natural biological process, it can be an adjustment).
They Tell Me I’m Going Through Puberty: This is a story told from the point of view of a teenager about the changes that are happening during puberty. This exercise helps students to understand that many of the changes that are happening in puberty happen to both boys and girls. The narrative format may help students relate to the changes that are occurring.
Boys/Girls/Both: In this activity, participants were given a series of cards each with a change that happens during puberty. They decide if these changes happen to boys, girls, or both. Again, this exercise helps students to understand that many of the changes that are happening in puberty happen to both boys and girls. Many of these changes are repeated from the first exercise although more are introduced. Each card separates out each change as concrete steps.
Puberty Worksheet: This worksheet is a check in on the changes participants have experienced, how they feel about these changes, and changes they anticipate. The worksheet was designed to help students anticipate some of the changes that will happen during puberty and help them to be aware of the changes that are happening in their own body. We use both open ended and multiple choice questions to stimulate different levels of thinking.
Diversity:We showed power point slides with pictures of several people showing a diversity of bodies and ages. Students were asked, “Which ones are going through puberty?”. This activity reinforces the concept that puberty is in some ways different and some ways the same for everyone. One thing that became evident was that the students had difficulty understanding that children hadn’t gone through puberty but the were quick to grasp onto the idea that adults are finished going through puberty. We used a few favorite characters to help the kids get a little excited about the topic.
Click on the Links Below to AccessMaterials
In preparing for the puberty section of Human Sexuality 101 I was looking at research on methods for teaching young girls with ASD about menstruation and came across an article using Social Stories (only a preview of the article is available for free).
In short, here’s the Four P Plan for Period Support
1. Prepare a period kit
2. Preinstruct (perhaps using social stories)
4. Plan for pain relief
Klett & Turan used a combination of three Social Stories adapted from Mary Warbol’s “Taking Care of Myself: A Hygiene, Puberty, and Personal Curriculum for Young People with Autism” (this book is not just for girls). They implemented the social stories before menarche (first period) and then planed to revisit them after menses began. These stories focused on growing up, what a period is, and how to take care of a period (I would reprint them but you have to be careful about Social Stories and their copy rights). They also used simulations with the girls using red syrup so they could practice changing a “used” menstrual pad. They reviewed the social stories over several days and completed simulations over several days. They also used different types of menstrual pads in case the girls did not always have access to the same type. They also asked the children questions about menstruation to check for comprehension (such as “What is the blood from your vagina called?” and “Do you need to wear a pad when you don’t have your period?”). This method proved effective in these case studies and the parents who implemented the plans where happy with it.
I have a good friend who made a menstrual kit for his daughter to start keeping in her book bag around age 11. In a zip lock bag he placed a change of underwear, menstrual pads, Tylenol, a change of shorts, and bathroom wipes. That way, if her first period was at school, she had everything she needed and wouldn’t need to ask for support unless she wanted to. I personally think this is a wonderful idea and wish my mom had thought of it when I was middle school! This idea has caught on because you can buy premade kits. Also, they make underwear that help keep menstrual pads in place.
I have heard that some families also preemptively use pain relief to support with discomfort and PMS. Not all girls associate the physical discomfort with their period or are able to communicate “I feel bloated” or “I have cramps.” Although these are phrases that you can teach and prompt, some families just start using an over the counter painkiller two or three days before they anticipate the start of the period. This isn’t foolproof because, especially when girls first start getting their period, they may have irregular cycles.
I found this great (free) book online. Although it targets parents, caregivers, and professionals who work with individuals who are deaf-blind and significantly developmentally delayed- you may find useful info even if this not your target population. Kate Moss & Robbie Blaha’s overall approach to education considers four basic tools for instruction: routines, units, teachable moments, and behavior plans. Chapters include …
Chapter 1 – Introduction
Chapter 2 – Sexuality Education
Chapter 3 – Developing an Instruction Plan
Chapter 4 – Modesty
Chapter 5 – Appropriate Touch and Personal Boundaries
Chapter 6 – Menstruation
Chapter 7 – Masturbation
Chapter 8 – Sexual Health Care
Chapter 9 – Sexual Abuse
I just want to highlight a couple of things I found particularly useful. They provide instructions for developing a sexual education policy and provide a model policy as well as sample permission forms. I also thought that their plan for supporting with menstruation was well thought out and useful.
There’s also the Texas School for the Blind and Visually-Impaired’s website
, which offers some strategies for supporting and educating visually impaired individuals about many topics such as gender roles, social skills, personal safety, gender identity, sexual language, masturbation, and reproductive anatomy.