Guest Room is a short film Written & Directed by Joshua Tate and starring Lauren Potter (“Glee”) and Michael Iovine (lovelandfilm.com). It won the Audience Award (Competition Short) at SXSW 2015.
I think you are going to love this movie. It’s beautiful, emotional, and honest. I could easily see this being used in a human sexuality classroom to help discuss parenting, consent, and support from families. It follows the story of a young couple who are faced in a situation many young couples find themselves in, an unexpected pregnancy. Like many young couples, the response of their families is shock and disappointment and this makes it difficult to determine their own feelings, hopes, and wants.
There was one statistic that was mentioned in the film that I had not heard before. It said that a women with Down Syndrome has a 50% chance of having a child with Down Syndrome. I did a little digging to see if I could find out more and received some help from The Tech Geneticist a project from the University of Stanford which seeks to increase the public understanding of genetics. About half of the eggs of a women with Down Syndrome will have an extra 21st chromosome (similar to what is described in this post http://genetics.thetech.org/ask/ask296). Her actual chance of having a child with Down Syndrome is less than 50% because fetuses with extra 21st chromosomes are at increased risk of complications. According to the National Down Syndrome Society only about 50% of women with Down Syndrome are fertile (ovulate).
It’s trickier when it comes to thinking about the father. Much less is known about the heritability (chance of passing a genetic trait on) of Down Syndrome for men with Down Syndrome, but it may be that their sperm that carry two 21st chromosomes would be less viable than their sperm that only have one. Both the Tech Geneticist and the National Down Syndrome Society suggested men with Down Syndrome seem to have much lower fertility rates than their same age peers with two 21st chromosomes.
A new curriculum called “Healthy Relationships and Autism” is now available from Wesley Spectrum (a behavioral health organization with several locations in the Pittsburgh, PA area). It was designed to teach skills to adolescents and young adults with Autism Spectrum Disorder or cognitive challenges in the areas of self care, sexuality, and relationship development. Their website has an example lesson to help you determine if it would be right for your students. They do not publish their pricing information (you have to email them for more information but they will send you a sample packet).
I have not used this curriculum but there is some evidence of it’s effectiveness. A study published in School and Educational Psychology evaluated this program with six students. These students showed increases in sexual knowledge which they retained one month after completing the class.
The Program for the Education and Enrichment of Relational Skills (PEERS) was originally developed at UCLA by Dr. Elizabeth Laugeson, Founder and Director of the UCLA PEERS Clinic, and Dr. Fred Frankel in 2005 and has expanded to locations across the United States and the world. PEERS is a manualized, social skills training intervention for youth with social challenges.
There are four options for getting training in PEERS. (1) The PEERS Certified Training Seminar last two days and is hosted at UCLA. It is designed specifically for mental health professionals and educators interested in learning and/or implementing the PEERS intervention into their clinical practice. (2) PEERS provides off-site training seminars, presentations or talks for a variety of agencies based on their specific needs. These may range from 1-4 days, with varying costs. (3) The PEERS Certified School-based Training for Educators is designed exclusively for teachers, school psychologists, counselors, speech and language pathologists, administrators, and school-based professionals who are interested in learning to implement The PEERS Curriculum for School-based Professionals. Attendees will obtain 24 hours of training over 3 days and this training also takes place at UCLA. And (4) PEERS provides off-site School-based training seminars, presentations or talks for a variety of agencies based on their specific needs. These may range from 1-4 days, with varying costs.
The PEERS program naturally lends itself to sex ed instruction. For example, the adolescent program focuses on
- How to use appropriate conversational skills
- How to find common interests by trading information
- How to appropriately use humor
- How to enter and exit conversations between peers
- How to be a good host during get-togethers
- How to make phone calls to friends
- How to choose appropriate friends
- How to be a good sport
- How to handle arguments and disagreements
- How to change a bad reputation
- How to handle rejection, teasing, and bullying
- How to handle rumors and gossip
This video features a program that uses PEERS for sex ed
The 1 hour and 13 minute movie, Autism in Love, is about falling in love, wanting to fall in love, the struggle of understanding love, and heartbreak. More than that, this movie is about what it means to be autistic, how love shapes identity, and the support of family. There are multiple viewing options but it is currently airing for free on Independent Lens. It follows the stories of four individuals on the autism spectrum as they navigate issues of love and relationships.
Here is a guide for using the film as a teaching tool: Autism in Love Viewing Guide
This movie is more geared toward adults as the youngest person featured in the film is in his early 20s and much of the film centers on marriage. If you were working with older teens, you may want to focus on Lenny.
This tool kit from ATN/AIR-P provides information on body changes; self-care and hygiene; public vs. private rules; staying safe: strangers, secrets and touch; elopement; safety planning for increased aggression; and Internet safety.
Some of my favorite features:
- Link to underwear designed to keep menstrual pads in place (I had no idea this existed!)
- They have parent stories throughout.
- They have suggestions for how occupational therapy can provide support.
This publication was developed and written by Vanderbilt Leadership Education in Neurodevelopmental Disabilities (LEND). There is a boy version and girl version. Each version has a booklet for parents or teachers and supplemental materials which include storyboards and visuals that you can use in implementing the methods outlined in the toolkit. It is free and there is a Spanish version!
Here is the website: https://vkc.mc.vanderbilt.edu/HealthyBodies/
This summer, at TAP in Urbana-Champaign, we are doing an eight week human sexuality group for middle school students. We have three boys and three girls in our group who range in age throughout the middle school years (from starting 6th grade to finishing 8th grade). Check out the slides that accompany the lesson.
Our first week was a blast. You can check out the full curriculum here [Sex Ed week 1]. We used a worksheet to help the students come up with their own definition of human sexuality. I love the definition we came up with as a group, “Sometimes human sexuality topics make us feel uncomfortable, but it’s a part of life, specifically, part of our private life. Human sexuality is about how we feel about people like loving someone and liking someone, but sometimes two people’s feelings may not match with each other. Human sexuality has to do with emotions, the body, and relationships.”
We sent a letter home with parents that explained the activities with fairly significant detail, touched on next weeks activities, and provided additional resources. One of the important parts of this letter was suggestions for ways to incorporate these topics at home. This week, as it was mostly about introductions, the parent component focused on using the rights and responsibilities at home.
For our sexual health week we talked focused on STDs and contraception methods although we did include more general health information in the newsletter. We did a condom demonstration and then practiced putting on condoms (we used bananas as our phallics). It was really important that we did that because several parts of putting on condom were tricky such as opening the wrapper and making sure it wasn’t inside out.
We talked about the “morning after pill” and STD testing. This is a more complicated topic for individuals with medical guardians. Individuals have the right to these forms of medical care without guardian approval if they are part of post sexual assault forensics. But what about outside of that context? This was especially timely as we had this class the same week a New York judge struck down age limits on the “morning after pill”.
We played a game with contraception methods and STDs that mimic Go Fish. It was a lot of fun. The cards for the game are below. Depending on your audience, you could either print out two copies of the same cards or there are two versions of each card so you can squeeze in twice as many facts.
If you’re teaching a class on this topic and would like to check out our materials, I’ve included them below.
At this stage in the game, my partner in crime took over teaching the course. This is part of training paradigm were testing out where we partner with a community agency to teach the course. We process course development together, I start out as lead facilitator, and then we transfer over. For person who is facilitating also develops the materials. In the end, the agency gets a copy of all the resources we developed (all the ones I’m sharing with you here). If you’re interested in doing something like this and are in the Champaign-Urbana area, contact me:)
Everyone in our group really understood topics of sexuality and the law at the extremes so we spend most of our time processing situations that would be more nuanced and contextual. These situations are quite difficult, even for individuals who have few/no intellectual impairments. We gave some general guidelines, like Facebook commenting guidelines and also tried to simplify legal language.
People in the class were really interested in crime statistics regarding sexual violence. We didn’t include a lot of that information, but it is something that we might want to consider in the future. It’s hard to balance providing people with accurate information but not sensationalizing or using scare tactics.
This week we used a case study activity. I’ve never used this as a teaching tool before. We read a news article about Facebook stalking. I think the idea of using case studies is really interesting and I would like to test out this tool in the future. I’d love to hear from you if this is something you’ve had success using.
The article pictured below was featured in the Newsletter this week. It’s from Connect Ability; a website that was specifically developed for individuals with developmental disabilities.
If you’re thinking about teaching this on your own, feel free to use the materials we’ve developed (below).
I’m partnering with a local service provider to offer a 10 week human sexuality class, Connections. I’m really excited about it. The goal is that the community agency will be able to continue offering classes in the future. They will have someone who has experience teaching a class and they will also have a set of materials. This is my first time doing a co-operating method of training so I’ll be keeping you posted on how it is going. If this is successful, it’s a model that I would like to pursue so if you’re in the Champaign-Urbana area and you’re interested, let me know.
The group is really great. I love working with middle school and high school students, but adults are just refreshing. This week we mostly just got to know each other. We did some of my favorite get to know you activities such as making collage of who we are on the outside and the inside.
We also have an undergraduate social work student working with us. She’s developing a newsletter that will go home each week with the participants. The newsletters expand on the topics that we talk about in class.
The other thing that is really neat bout this group is that one of the participants comes to the planning meetings and helps set the group up. He’s taking a participant and instructor role.
I’ve attached all the materials we used for the class.
It can be a little overwhelming to start thinking about communicating pictorially about human sexuality topics, but there are some supports available.
Many of you already use Board Maker (computer software that helps make visual supports and PECS). They have a “Communicating About Sexuality” add on that is very useful and only costs $15.00 (but you have to already have Board Maker).
If you would like some guidelines on how to approach augmentative and alternative communication (AAC) in regards to sexuality Speak Up has resources that you may find useful. Speak Up is a group dedicated to preventing sexual abuse/victimization among people who use alternative communication. They have guidelines, suggestions for communication displays, and information about building sexual vocabulary. This group surveyed individuals who use AAC and found that ACC users say they need:
- People who recognize that they are sexual
- Information about sexuality
- Vocabulary to communicate about sexuality
- People to communicate with about sexuality
- Accessible resources and services
Sounds pretty darn reasonable to me.
This book by Miriam Kaufman, Cory Silverberg, and Fran Odette is eye opening. It’s written by people with disabilities for people with disabilities and focuses on the joys of sexual intimacy. As a typically developing person, it challenged a lot of my assumptions about sex and made me think about new things. Chapters include: Myths About Disability and Sex; Desire and Self-Esteem; Sexual Anatomy and Sexual Response; Communication; Sex with Ourselves; Sex with Others; Oral Sex, Penetration and Positioning; Sex Toys, Books, and Videos; Yoga and Tantric Sex; S/M; Sexual Health; Sexual Violence and Sexuality; Resources; and Glossary of Gender and Sex Terms. I want to share two passages with you.
Sex and Spontaneity
“We’re taught that sex is suppose to be spontaneous, something that just comes naturally (like ‘true love’). This belief is damaging to everyone, but is a real problem for people living with disabilities, because any amount of planning makes sex not spontaneous. Believing in this myth pretty much ensures a lously sex life.
While sex has many meanings, at its heart sex is a process of communication. Whether we are flirting from across a crowded room, giving someone head for the first time, or making love while listening to a piece of music that totally turns us on, being sexual is being in contact with ourselves and our surroundings. The idea that this process can happen without thinking, talking, or planning is ridiculous.
Maybe we are willing to buy into the myth of sexual spontaneity because talking about our desires is difficult. It’s risky, and makes us feel exposed and vulnerable, and often vulnerability is equated with weakness.”
This made me think a lot about the way I teach reproduction and sexual intimacy. I tend to focus a lot sexual behavior, but not as much on the planning and communication that comprises that behavior. Also, I do a lot of role playing, planning out what you’re going to say in advance, and scripting. I’ve never really done that around negotiating intimacy.
“If we were taught anything about sex at all when we were younger, many of us learned that sex was something private, inappropriate to talk about or do in front of others. Privacy becomes a requirement for sexuality.
From someone living in an institution, or using attendant services, or needing the assistance of someone else to facilitate communication, privacy is a completely different reality. The definition of privacy changes when you have no lock on your door, or when you request private time at a specific hours knowing that it will probably be written down in a log-book. This myth is one of those ‘no-win situations,’ because we’re told that real sex is a private matter and, guess what, you can’t have that kind of privacy.”
This passage really challenged me to think about how I teach privacy and how I teach about relationship types. I think sometimes I might ignore that what a lot of people think of as privacy and the individual I am working with reality of privacy are two disparate things.
I do wish this book focused a little more on people with intellectual disability and was written at lower reading level. I do think people with ID/DD could read it with support, especially sections. Much of the book is testimonies by people with disabilities and I think these passages could be great teaching tools. There are also suggested exercises- one of the exercises was about looking at your body. I teach antimony all the time, but I don’t think I’ve ever said, “when you’re at home, alone in your bedroom, look at and feel your body and check out the parts we’ve been talking about, you can even use a mirror.”
Songs for Your Body is a curriculum comprised of, you guessed it, songs. They cover hygiene, abuse, masturbation, contraception, sexually transmitted infections, and sexual health. You can preview the songs on their website- I liked the masturbation songs. In general, they’re a little hokey but I think it’s a good example of thinking outside the box. The CD is $15.41 including shipping and handling and comes with a booklet of lyrics and activities.
What is facilitated sex? This brief video explains what facilitated sexual activity is and some of the considerations.
Dr. Mitchel Tepper is an expert in the area of sexual health, disabilities, and medical conditions with a specific focus on physical disabilities. His website can connect you with a lot of great information (I especially like his blog).
Some things to keep in mind about facilitated sex…
- Facilitated sex is a continuum. Dr. Sarah Earle suggests it might include providing sex education, fostering an environment that allows intimacy, the procurement of sexual goods, and arranging for paid-for sexual services.
- Many individuals with disabilities would be unable to participate in many parts of sexual expression without some level of facilitation.
- It’s not that abuse and victimization aren’t concerns- they are! It is also important to consider how to support individuals with exploring sexual pleasure and sexual facilitation is part of that picture.
This online store features 33 dvd based resources for teaching human sexuality to individuals with intellectual disability. They have resources for…
- All age ranges
- Boys and girls
Prices range from $35.00 to $250.00 with everything in between. This could be a great place to find what you need.