Songs for Your Body is a curriculum comprised of, you guessed it, songs. They cover hygiene, abuse, masturbation, contraception, sexually transmitted infections, and sexual health. You can preview the songs on their website- I liked the masturbation songs. In general, they’re a little hokey but I think it’s a good example of thinking outside the box. The CD is $15.41 including shipping and handling and comes with a booklet of lyrics and activities.
What is facilitated sex? This brief video explains what facilitated sexual activity is and some of the considerations.
Dr. Mitchel Tepper is an expert in the area of sexual health, disabilities, and medical conditions with a specific focus on physical disabilities. His website can connect you with a lot of great information (I especially like his blog).
Some things to keep in mind about facilitated sex…
- Facilitated sex is a continuum. Dr. Sarah Earle suggests it might include providing sex education, fostering an environment that allows intimacy, the procurement of sexual goods, and arranging for paid-for sexual services.
- Many individuals with disabilities would be unable to participate in many parts of sexual expression without some level of facilitation.
- It’s not that abuse and victimization aren’t concerns- they are! It is also important to consider how to support individuals with exploring sexual pleasure and sexual facilitation is part of that picture.
This online store features 33 dvd based resources for teaching human sexuality to individuals with intellectual disability. They have resources for…
- All age ranges
- Boys and girls
Prices range from $35.00 to $250.00 with everything in between. This could be a great place to find what you need.
Shirley Paceley is based out of Blue Tower Training in Decatur, Illinois. She has been working with individuals with developmental disabilities for over 30 years and has specific expertise in abuse prevention and intervention. She is available to do trainings and consultations.
Check out this online store for books and resources developed by Shirley and others for teaching about sexuality and sexual abuse prevention.
Many women with development disabilities are under anesthesia during pelvic exams or don’t get them at all (or as recommended). However, educating about pelvic exams may be an important part of teaching sexual health. I’ve included the link to a video that may help.
This is a brief video that goes through the basic procedure of a woman having a pelvic exam. This could also be a good video for teaching about female anatomy. It has a lot of technical terminology but it also moves nice and slow.
For those you how enjoy following blogs, and especially for those of you who enjoy blogs that feature individuals with disabilities, and particularly if you would like to read more about disability and sexuality- this blog is for you.
Dave Hingsburger is behind many of the resources from Diverse City Press such as Handmade Love/Finger Tips (masturbation education), No How (abuse prevention), and Undercover Dick (condom use). He also has written several books such as The Key (supporting individuals with disabilities who are also sexual offenders), R: The R Word (bullying self-advocacy), and Just Say Know (victimization). This is not an exhaustive list, but it gives you an idea.
There are many different ways to make visuals: cut and paste from magazines, jot down words and images, use Boardmaker, use power point…
For each method there are different pros and cons and a lot can be said for something that’s just plain easy to use. I also don’t think there’s anything wrong with a visual that has been made quickly- if it gets the message across, it doesn’t have to look nice.
But sometimes it is important for for a visual to be ascetically pleasing- and I wanted to share a free tool that’s available for making infographics (what marketers and advertisers call visual supports). It’s not particularly easy to use and it takes more time, but in the end you have a nice looking product. I would use this I wanted to make something I could use over and over (it’s worth the time) or if I was working with someone who thinks my regular visuals are “babyish”. You have to be careful about resisting the temptation to over clutter. There are several different generators, but for no cost, this one has the most flexibility and is relatively easy to use. http://www.easel.ly/
This visual goes along with the “What Should I do?” exercise we did during the workshop. You can download this visual as a PDF.
This topic generated a lot of good discussion. Our group was a little distracted today (maybe because we had a week break). For next week we’re going to try a few different classroom management strategies so we can try to spend more time focused. We’re going to simplify the rights and the responsibilities and give them 3 rules (no talking when I’m talking, no hitting, and no mean comments). We’ll also use a visual stop sign for if the group gets out of control. I’ll keep you posted how it goes! Having said that, despite distractions, I’m confident the group did learn a few things about crushes.
Activities this week…
What is a crush?
Students brainstormed what a person with a crush might be thinking and feeling. Students varied in their level of understanding as to what a crush is. This activity helped students understand that crushes are a special set of thoughts and feelings about another person. They will learned from each other what those thoughts and feelings are. None of the students in our group expressed ideas about what a crush is that would not be safe if acted upon (I was thinking someone might say something like, “I just want to stare at the person all the time and follow them around.”) We were ready to address any of the items from the brainstorm that were unsafe. In later discussion we labeled some ideas as unsafe.
How to deal with a crush
We’re used a short video to outline four steps for managing a crush: don’t tell everyone, hang out with mutual friends, talk to them directly, and don’t take it personal if they don’t like you back. As we watched the video we filled out a worksheet. The video gives very concrete advice for how to manage a crush. The questions on the worksheet helped students think about what they might say and how they may feel when trying to manage a crush.
This is where they got a little distracted. In the future, I would shorten the worksheet so there is only one question per tip. I would maybe have them work on answering the questions with a partner, then sharing with the group.
Turning someone down
We introduced students to three strategies for turning someone down or saying “NO”: no with a reason, no with an alternative, and no and go. We introduced these strategies as a way to avoid unwanted crushes. They can be used in many contexts, but especially in the future, could be use to avoid unwanted sexual behavior. Students role-played saying no in different ways to someone who has a crush on them. The role-plays worked really well! Role-playing can be difficult but it’s a great tool for rehearsing concepts that your hoping students will be able to perform in the future.
Materials for this week
Hygiene is not on the SEICUS guidelines for what to teach in a human sexuality class, but we find that it can be a hard topic for students. It also is strongly connected to puberty because it is during puberty that hygiene needs change at the same time young people have more autonomy and responsibility for their hygiene. We tackled hygiene with a series of activities we called hygiene Olympics. In small groups, students moved throughout the stations to practice and contemplate hygiene tasks.
Materials for this week
- Hygiene Olympics Stations
- Morning Hygiene Routine Pictures
- My Morning Hygiene Routine Worksheet
- Parent Letter
I’ve been working on a training for parents who are primarily Spanish speakers so I’ve been looking for materials available in Spanish. I hit the jackpot when I translated my search terms into Spanish. I thought you might be interested in my Spanish Resource List.
Free Resources in Spanish Specific to Youth with Disabilities
- Guide to teaching human sexuality http://www.asturias.es/Asturias/descargas/PDF%20DE%20TEMAS/Asuntos%20Sociales/guia%20de%20educacion%20sexual%20y%20discapacidad.pdf
- Guide and curriculum for teaching human sexuality http://www.unfpa.org.uy/userfiles/publications/62_file1.pdf
- Guide and curriculum http://invisibles.org.ar/blog/wp-content/uploads/2010/08/200810081657070educacionsexual.pdf
- Website with information, movies about sexuality and disability, and advocacy information http://sexualidadespecial.blogspot.com
- Website and video http://www.educagenero.org/discapacidad.html
- Spanish only article: http://www3.usal.es/~inico/actividades/actasuruguay2001/9.pdf (Link to the article, Educación sexual y discapacidad).
- Curriculum (also available in English) https://asdsexed.wordpress.com/2012/04/06/free-curriculum-educator-version-teacher-version-spanish-version-9/
Books in Spanish and English Specific to Youth with Disabilities
- “The Rules of Sex: For Those Who Have Never Been Told” by Nora Baladerian in English or Spanish for $25.00 ($17.00 pdf download) http://www.norabaladerian.com/contents/rules-of-sex-spanish.htm (takes you to the Spanish version of the table of contents) http://www.norabaladerian.com/books.htm (takes you to the order page).
- “Period: A Girl’s Guide” is written for young women to explain menstruation http://www.amazon.com/Periodo-Period-Spanish-Language-Edition/dp/091677399X (takes you to the amazon page for the Spanish language version of the book). The book is $10 plus shipping and handeling.
Free Parent Resources in Spanish and English not Specific to Youth with Disabilities
- Newsletters with developmental messages (in English and Spanish) http://www.siecus.org/index.cfmfuseaction=page.viewPage&pageID=632&nodeID=1
- A recourse guide for talking about difficult topics including sexuality (in English and Spanish) http://www.childrennow.org/index.php/learn/twk_sex
- Information http://www.advocatesforyouth.org/component/customproperties/tag?tagId=45 (link takes you to their Spanish language articles)
- Information http://www.plannedparenthood.org/ (just Click the option for the Spanish version of the site)
Living Safer Sexual Lives is a training pack available for purchase ($57.23) for those of you who may be doing training on human sexuality and disabilities. I have not personally used their materials, but it was developed in a very interesting way and it’s not very expensive so I thought I’d pass it along. A research group in Australia interviewed several people with intellectual disability about their sexual lives and then used their stories to develop this training. The training is targeted toward parents, professionals, and self advocates. The training pack has three parts: introduction, training, and resources (including a DVD of people with intellectual disability telling their stories).
You can read the full report which outlines the findings from the interviews and how they used the interviews to shape the training. The report also includes accounts from people with disabilities about their sexuality.
The key themes that emerged from the stories were:
- Diversity and similarity. Diversity within the lives of the story-tellers and similarities between needs and desires of this group and other adults.
- The issues of rights and sexuality.
- The hidden nature of people’s sexual lives.
- Celebration of sexuality and relationships.
- Gender issues.
- Loneliness and rejection.
A workshop participant put me in touch with this awesome resource (thanks Cate!). Impact is a newsletter from the University of Minnesota’s Institute on Community Integration which is part of their Center for Excellence in Developmental Disabilities. They have many products and services that you may find useful (many of which are available online or at little cost). Their newsletters contain ” strategies, research, and success stories in specific focus areas related to persons with intellectual, developmental, and other disabilities. ”
The sexuality issue has several interesting articles written by individuals with disabilities, service providers, family, and community members. In addition to the articles, the newsletter provides information about additional resources in several areas: education, parent support, advocacy, sexual health, and sexual safety.
The story in Impact that touched me the most was one about two men who were harshly punished for their love for one another while institutionalized but were finally able to be married. Once they were both living in group homes and reunited…”they decided they would not live together, they would not have sex, until they were married. They had been punished so often, told continuously that they were dirty, sinful, hateful creatures, that they needed to get married ‘liked other people.'” Dave Hingsburger* commented “How we hate the hearts of people with disabilities! We have caged their bodies, disfigured their genitals, drugged their thoughts. But we have never, ever captured their hearts or controlled their spirits.”
*The link in the text is to Dave Hingsburger’s blog. He is the author of several resources for teaching human sexuality and abuse prevention to individuals with intellectual and developmental disabilities. The resources can be found at Diverse City Press.
A lot of the curriculum we used for the puberty unit of our Human Sexuality 101 group was adapted from “Teaching Sexual Health“. They are a group out of Canada that provides support for teachers and parents. I used their general curriculum but they also have a curriculum for students of differing ability levels. They have great resources for parents including “webisodes” that give examples of parents talking to kids about sexuality topics. The website is very well organized and easy to use!
In preparing for the puberty section of Human Sexuality 101 I was looking at research on methods for teaching young girls with ASD about menstruation and came across an article using Social Stories (only a preview of the article is available for free).
In short, here’s the Four P Plan for Period Support
1. Prepare a period kit
2. Preinstruct (perhaps using social stories)
4. Plan for pain relief
Klett & Turan used a combination of three Social Stories adapted from Mary Warbol’s “Taking Care of Myself: A Hygiene, Puberty, and Personal Curriculum for Young People with Autism” (this book is not just for girls). They implemented the social stories before menarche (first period) and then planed to revisit them after menses began. These stories focused on growing up, what a period is, and how to take care of a period (I would reprint them but you have to be careful about Social Stories and their copy rights). They also used simulations with the girls using red syrup so they could practice changing a “used” menstrual pad. They reviewed the social stories over several days and completed simulations over several days. They also used different types of menstrual pads in case the girls did not always have access to the same type. They also asked the children questions about menstruation to check for comprehension (such as “What is the blood from your vagina called?” and “Do you need to wear a pad when you don’t have your period?”). This method proved effective in these case studies and the parents who implemented the plans where happy with it.
I have a good friend who made a menstrual kit for his daughter to start keeping in her book bag around age 11. In a zip lock bag he placed a change of underwear, menstrual pads, Tylenol, a change of shorts, and bathroom wipes. That way, if her first period was at school, she had everything she needed and wouldn’t need to ask for support unless she wanted to. I personally think this is a wonderful idea and wish my mom had thought of it when I was middle school! This idea has caught on because you can buy premade kits. Also, they make underwear that help keep menstrual pads in place.
I have heard that some families also preemptively use pain relief to support with discomfort and PMS. Not all girls associate the physical discomfort with their period or are able to communicate “I feel bloated” or “I have cramps.” Although these are phrases that you can teach and prompt, some families just start using an over the counter painkiller two or three days before they anticipate the start of the period. This isn’t foolproof because, especially when girls first start getting their period, they may have irregular cycles.
Autism Now isn’t specifically focused on topics related to sexuality but they do have some great resources I thought I could highlight.
They have a series of webinars related to sexuality topics. If you click on the link you’ll be taken to a registration box that you have to fill out to view the material. I’ve also included links to the slides- this is a direct link, you don’t need to register.
Slides: “Sex is when people use their bodies together to share love and pleasure.”
Slides: “Research says that the IQ has to be below 50 before you can say IQ and parenting skill are connected (Feldman& Tymchuk, 2002).”
And they just had one on May 15th, but you’ll have to keep an eye on the archive list because it’s not up yet- “Let’s Talk About Sex: Discussing the Topics of Sex, Protection, and/or Sexuality from Three Unique Viewpoints”
In addition to the webinars they have some general “fact sheet” style info that might be helpful on topics such as dating, marriage, divorce, relationships, sexuality, parenting, and friendships. These include general information as well as parent tips.
I was really impressed by the quality and quantity of ASD related resources on a variety of topics so it’s a good one to have in your tool belt.
I just wanted to link to one other power point presentation that I thought had a lot of good information. “Sexuality & Sexuality Instruction with Learners with Autism Spectrum Disorders and Other Developmental Disabilities” by Peter F. Gerhardt, Ed.D., Director The McCarton Upper School